Bhizinesi rekuvandudza uye kutengesa mishonga ibhizimusi guru, nemakambani anounza mabhiriyoni mumari yegore negore. Munyika yose, kutengesa kwemishonga yemishonga inotarisirwa kudarika madhora 1.3 triliyoni muna 2018. Kutengesa Pharma kwakawanda kudarika chibereko chakakura chemarudzi gumi nemashanu, zvakabatanidzwa. Kune vamwe vanhu, zvikurukuru avo vane zvirwere zvisingaoneki, mari yezvipirwo izvi zvinogona kudiwa. Mishonga yemherera, mishonga yakagadzirirwa kutarisa zvirwere zvinowanikwa nevanhu vashomanana, zvinogona kutengesa zviri nyore mumatare matanhatu.
Mamwe makambani emishuwarenzi haazofukidze zvose kana chikamu chakakura chemishonga iyi, achisiya mhuri nevanhu vanovhiringidzika kuti vaite mari yavo pachavo. Ichi chinhu chakakosha chemari chevanhu vazhinji uye chakaita kuti kuongororwa kwakanyanya kune zvemhizha.
Zvimwe zviyero zvakaiswa panzvimbo yekugadzirisa mari, zvakadai sesangano risina purogiramu uye mapurogiramu ekubatsira rubatsiro. Kunyange zvazvo izvi zvingave zvinobatsira kune vamwe, huwandu hwevanhu hahukodzeri uye hunofanira kubhadhara muhomwe yemishonga inoponesa upenyu.
01 Glybera
Mushandi wayo, UniQure, akati muna 2017 kuti hazvizoiti kuti hazvizove kuvandudzwa kwechirongwa chekutengesa zvinodhaka muEurope. Pasinei nemutengo wayo wakareba, Glybera haana kumbobatwa pamusana pekutsvaga kwakanyanya kwevarwere.
02 Soliris
Soliris inogona kurapa varwere kusvika ku $ 700,000 pagore, mushonga unoshanda unoshanda kurapa paroxysmal nocturnal hemoglobinuria. Vanhu 8 000 chete vari munyika vane mamiriro ezvinhu. Chirwere ichi chinoparadza masero matsvuku eropa, zvichiita kuti varwere vave nehutachiona, chirwere chekushaya ropa uye ropa.
MunaSeptember 2017, zviremera zveCanada zvakarayira muumbi weAlexxion Pharmaceuticals kuti vaderedze mutengo weSoliris, vachichitumidza kuti yakawandisa.
03 Elaprase
Elaprase inoshandiswa mukubata Hunter Syndrome, chinhu chisingawanzwisisiki chinokanganisa vanhu vanenge 500 muUnited States iyo inhibisa huropi hunoita basa uye kukura mumuviri. Mari yegore negore yemishonga inopfuura $ 500,000.
04 Naglazyme
Naglazyme inoshandiswa kurapa Maroteaux-Lamy Syndrome, mamiriro ezvinhu anokanganisa maitiro anobatana. Zviratidzo zvinowanzobatanidza zvishoma nezvishoma, zvinopesana nekugadzirisa, nyaya dzemoyo uye kukuvara kwehupi. Mushonga wacho unodarika madhora 365,000.
05 Cinryze
Cinryze inobata chiitiko chinonzi angioedema, chirwere chinoparadza mumwe muvanhu 50 000 muUnited States. Pamutengo we $ 350,000 pagore, mushonga uyu unobata kuzvimba kwemaoko, huroti, uye mudumbu.
06 Folotyn
Folotyn inorapa maitiro evanhu vasina kurwara kanonzi T-cell lymphoma. Inotorwa sekupedzisira kushandiswa kurapwa kunotora vhiki nhanhatu. Pamutengo we $ 320,000, hauna kuratidzirwa kuwedzera upenyu kwenguva refu, saka inowanzoshandiswa mumamiriro ezvinhu akawandisa chete.
07 Acthar
Acthar anorayirwa kuti abate zviduku kana kusangana. Izvi zvinowanzobata vana pakati pemakore mana nemwedzi gumi nemana, asi Acthar inobvumirwa kubata vana kusvika pamakore maviri. Inoshandiswawo kubata zvirwere zvakasiyana-siyana muvanhu vakuru, kusanganisira multiple sclerosis. Inodarika $ 200,000 pagore.
Chidzidzo che 2017 mu Journal of the American Medical Associaton chakabvunza kubudirira kweAtrakhar, zvichiratidza kuti yakanga isiri yakakosha kupfuura dzimwe kurapa dzinodhura dzinowanikwa.
08 Myozyme
Myozyme ndiyo mushonga wePompe, chirwere chisingawanzoitiki uye dzimwe nguva chinouraya chinorwisa mwoyo uye maronda emasumbu. Apo inobata vacheche, kufa kunowanzoitika mugore rekutanga. Myozyme inonzi lysosomal glycogen-enzyme chaiye iyo mune zvidzidzo yakawedzera kupona uye yakaderedza varwere kuvimba nemhepo. Mariro yegore negore iri pakati pe $ 100,000 ne $ 300,000 pagore. Haisi ikozvino kuwanikwa muUnited States